Agency Issues First Report on Sickle Cell Gene and Cell Therapy Treatments
CHICAGO — As required by Executive Order 2024-01 , the Illinois Department of Healthcare and Family Services (HFS) submitted to the Governor and the General Assembly its first report from the Advisory Council on Financing and Access to Sickle Cell Disease Treatment and other High-Cost Drugs and Treatment . The report evaluates the success and challenges of various value and outcome-based payment approaches implemented in other states and includes recommendations for financing and increasing equitable access for these drugs in Illinois. In fulfillment of the Executive Order, the advisory council met six times over the past six months, culminating in the production of this report. The full report can be found here . “When I signed the Executive Order to create this council, it was with the clear goal of making life-changing gene and cell therapy treatments affordable and available to every Illinoisan,” said Governor JB Pritzker. “These recommendations
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