by Duaa Eldeib, Nadia Sussman, Liz Moughon and Adriana Gallardo
Every year, more than 20,000 pregnancies in the United States end in stillbirth, the death of an expected child at 20 weeks or more.
That number exceeds infant mortality, and is 15 times the number of babies who died of Sudden Infant Death Syndrome, or SIDS, according to 2020 data from the Centers for Disease Control and Prevention.
These deaths are not inevitable. One study found that nearly one in four stillbirths may be preventable. But while other wealthy nations have reduced their stillbirth rate, the U.S. lags behind.
The stark racial disparities underscore the crisis. Black women are more than twice — and in some states close to three times — as likely to have a stillbirth as white women.
ProPublica has reported on stillbirths and is working to better understand their lasting effects. To do that, we need your help. We want to hear your stories and your struggles with everything from counseling to navigating the administrative process of obtaining a certificate of stillbirth.
We hope to hear from you, whether you’re a mother or a family member, a doctor or a doula, a collector of data or a researcher. Given the racial disparities, we are particularly interested in hearing from Black mothers and Black medical professionals.
We know this is a big ask. If writing about your experience is too painful, indicate that below and a reporter will try to get in touch directly. We appreciate you sharing your story and we take your privacy seriously. We are gathering these stories for the purposes of our reporting and will contact you if we wish to publish any part of your story.
We will read every response. We won’t be able to connect with everyone, but even if you don’t hear from us, please know that your responses will inform our next stories.