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“I Don’t Want to Die”: Needing Mental Health Care, He Got Trapped in His Insurer’s Ghost Network

1 year 2 months ago

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This article contains descriptions of mental illness, alcohol addiction and suicidal ideation.

Early one morning in February 2023, before the sun rose over Phoenix, Ravi Coutinho went on a walk and, for a brief moment, thought about hurling his body in front of a moving bus. He had been feeling increasingly alone and depressed; anxious and unlovable; no longer sure if he was built for this world.

Several hours later, Ravi swiped open his iPhone and dialed the toll-free number on the back of his Ambetter insurance card. After navigating the automated voice system, he was routed to a friendly, fast-talking customer service rep with a slight foreign accent. His name was Giovanni.

“How can I help you today?” Giovanni asked.

“Hi, I am trying to find a psychiatric care provider,” Ravi said.

“So, you are looking for a primary care provider?” Giovanni asked.

“No,” Ravi replied, seeming confused. Ravi tried to clearly repeat himself. “Psy-chi-at-ric.”

“Psychiatric, all right, so, sure, I can definitely help you with that,” Giovanni said. “By the way, it is your first time calling in regards to this concern?”

Listen to this exchange.

Ravi paused. It was actually the sixth attempt to get someone, anyone, at Ambetter to give him or his mother the name of a therapist who accepted his insurance plan and could see him. Despite repeatedly searching the Ambetter portal and calling customer service, all they had turned up so far, he told Giovanni, were the names of two psychologists. One no longer took his insurance. The other, inexplicably, tested patients for Alzheimer’s disease and dementia and didn’t practice therapy at all.

“I’m a little concerned about all this,” Ravi said.

This had not been part of the plan Ravi had hatched a few months earlier to save his own life. Diagnosed with depression and anxiety, and living in the heart of Austin, Texas’ boisterous Sixth Street bar district, the 36-year-old former college golfer had become reliant on a dangerous form of self-medication.

His heavy drinking had cost him his marriage and was on the verge of destroying his liver and his livelihood. His therapist back in Texas had helped him understand how his mental illnesses were contributing to his addiction and vice versa. She had coached him through attempts to get sober.

He wanted to save his business, which sold dream vacations to golfers eager to play the world’s legendary courses. He wanted to fall in love again, even have a kid. He couldn’t do that when he was drinking a fifth of a gallon of liquor — the equivalent of nearly 17 shots — on any given day.

Ravi with a golf tournament trophy and playing a course in Scotland

When all else had failed, he and his therapist had discussed a radical move — relocating to the city where he’d spent his final years of high school. Phoenix symbolized a happier and healthier phase. They agreed that for the idea to work, he needed to find a new therapist there as quickly as possible and line up care in advance.

Ravi felt relieved when he signed up for an insurance plan right before the move. Ambetter wasn’t as well known as Blue Cross Blue Shield or UnitedHealthcare. But it was the most popular option on HealthCare.gov, the federal health insurance marketplace, covering more than 2 million people across the country. For $379 a month, his plan appeared to have a robust network of providers.

Frustrating phone calls like this one began to confirm for Ravi what countless customers — and even Arizona regulators — had already discovered: Appearances could be deceiving.

After misunderstanding Ravi’s request for a therapist, Giovanni pulled up an internal directory and told Ravi that he had found someone who could help him.

It was a psychiatrist who specialized in treating the elderly. This was strange, considering that Giovanni had asked Ravi to verify that he was born in 1986. “I mean, geriatric psychiatry is not …” Ravi responded, “I mean … I wouldn’t qualify for that.”

Listen to this exchange.

Annoyed but polite, Ravi asked Giovanni to email the provider list on the rep’s computer. He figured that having the list, which he was legally entitled to, would speed up the process of finding help.

But Giovanni said that he couldn’t email the list. The company that ran Ambetter would have to mail it.

“What do you mean, mail?” Ravi asked. “Like physically mail it?”

Listen to this exchange.

Ravi let out a deep, despondent sigh and asked how long that would take.

Seven to 10 business days to process, Giovanni responded, in addition to whatever time it would take for the list to be delivered. Ravi couldn’t help but laugh at the absurdity.

“Nothing personal,” he told Giovanni. “But that’s not going to work.

“So I’m just gonna have to figure it out.”

Listen to this exchange.

This baffling inability to find help had tainted Ravi’s fresh start.

In the weeks before the call with Giovanni, Ravi had scrolled through Ambetter’s website, examining the portal of providers through his thick-rimmed glasses. He called one after the next, hoping to make an appointment as quickly as possible.

Of course, it was unreasonable to expect every therapist in Ambetter’s network to be able to accept him, especially in a state with an alarming shortage of them. But he couldn’t even find a primary care doctor who could see him within six weeks and refill his dwindling supply of antidepressants and antianxiety meds.

Days before he was supposed to move to Phoenix, he texted friends about his difficulties in finding care:

“Therapists have been 0-4.”

“Called ten places and nothing.”

“The insurance portal doesn’t know shit.”

Ravi didn’t know it, but he, like millions of Americans, was trapped in a “ghost network.” As some of those people have discovered, the providers listed in an insurer’s network have either retired or died. Many other providers have stopped accepting insurance — often because the companies made it excessively difficult for them to do so. Some just aren’t taking new patients. Insurers are often slow to remove them from directories, if they do so at all. It adds up to a bait and switch by insurance companies that leads customers to believe there are more options for care than actually exist.

Ambetter’s parent company, Centene, has been accused numerous times of presiding over ghost networks. One of the 25 largest corporations in America, Centene brings in more revenue than Disney, FedEx or PepsiCo, but it is less known because its hundreds of subsidiaries use different names. In addition to insuring the largest number of marketplace customers, it’s the biggest player in Medicaid managed care and a giant in Medicare Advantage, insurance for seniors that’s offered by private companies instead of the federal government.

ProPublica reached out to Centene and the subsidiary that oversaw Ravi’s plan more than two dozen times and sent them both a detailed list of questions. None of their media representatives responded.

In 2022, Illinois’ insurance director fined another subsidiary more than $1 million for mental health-related violations including providing customers with an outdated, inaccurate provider directory. The subsidiary “admitted in writing that they are not following Illinois statute” for updating the directory, according to a report from the state’s Insurance Department.

In a federal lawsuit filed in Illinois that same year, Ambetter customers alleged that Centene companies “intentionally and knowingly misrepresented” the number of in-network providers by publishing inaccurate directories. Centene lawyers wrote in a court filing that the company “denies that it made any misrepresentations to consumers.” The case is ongoing.

And in 2021, San Diego’s city attorney sued several Centene subsidiaries for “publishing and advertising provider information they know to be false and misleading” — over a quarter of those subsidiaries’ in-network psychiatrists were unable to see new patients, the complaint said. The city is appealing after a judge sided with Centene on technical grounds.

Even the subsidiary responsible for Ravi’s plan had gotten in trouble. Regulators with the Arizona Department of Insurance and Financial Institutions found in 2021 that Health Net of Arizona had failed to maintain accurate provider directories. The regulators did not fine Health Net of Arizona, which promised to address that violation. When ProPublica asked if the company had made those fixes, the department said in a statement that such information was considered “confidential.”

These were exactly the type of failures that Ravi’s mother, Barbara Webber, confronted as the head of an advocacy group that lobbied for greater health care access in New Mexico. From her Albuquerque apartment more than 300 miles away from her son’s new, 12th-floor studio, she listened to Ravi vent about how hard it was to find a therapist in Phoenix.

Ravi was Barbara’s only child, and they had always been close. In the seven years since Ravi’s dad died, they’d grown even closer. They talked on the phone nearly every day. Barbara was used to supporting Ravi from afar, ordering him healthy delivery dinners, reminding him to drink enough water and urging him to call crisis hotlines amid panic attacks. But when Ravi crashed at her apartment while waiting to move to Phoenix, she saw more of his struggles up close. At one point, she called 911 when she feared for his life.

Ravi with his mother, Barbara Webber, on a hike in Arizona in March 2023 and on a childhood trip with her to Lake Tahoe

Despite her desire and ability to help him, Ravi didn’t want to stay with his mom for any longer than necessary. He didn’t want to feel like a teenager again.

Barbara understood her son’s desire for independence, and when he first encountered insurance barriers, she drew from her expertise and coached him through ways to try to get past them. But by the middle of February, a few days after Ravi settled into his new place, there was no good news about his mental health care. She felt the need to step in.

So, she called Ambetter to try to get better information than what Ravi was looking at online. But Khem Padilla, a customer service rep who seemed to be working at a call center overseas, couldn’t help her find that information. She then asked Padilla to send referrals to therapists.

When Padilla followed up, he only sent phone numbers for mental health institutes, including one that exclusively served patients with autism. “I wish that everything will work together for you,” Padilla wrote in an email to Barbara and Ravi on what happened to be Valentine’s Day, “and [don’t] forget that you are Loved.”

Loneliness is one of the strongest forces for triggering a relapse in someone addicted to alcohol, and Ravi’s early days in Phoenix provided a dangerous dose.

His old friends were often busy with work and family. He hadn’t found his way to a new Alcoholics Anonymous group yet. And he struggled to find matches on dating apps. (“Phoenix Tinder is a wasteland,” he told one friend.) His only consistent companion was Finn, a half-Great Pyrenees with a thick coat of fluffy white hair, whom he took on long walks around the city. “His unconditional love brings me so much joy,” he’d told his mom.

Alone in his apartment with Finn, vodka within reach, Ravi felt guilty about calling his loved ones for help. Even though his mom and his friends would pick up the phone at just about any hour, Ravi hated the idea of bothering them.

But he couldn’t resist after he hung up with Giovanni, the customer service rep. That afternoon, Feb. 22, he fired off a frustrated text message to his mom.

“How is it this hard?!” Ravi seethed.

Barbara’s next move was to reach out to a member of her nonprofit board who happened to work for a Centene company. The board member helped pull strings in late February to get Ravi a care manager, a person who works for the insurer to help patients navigate access to providers. But not even his new care manager, Breona Smith, a licensed professional counselor based in Arizona, could connect him to a therapist.

She spent 16 minutes calling in-network providers to check if they could see him. Four couldn’t. One could. Instead of calling more, she sent along a single therapy referral. When Ravi called that office, the staff had to verify if they accepted Ambetter. But Ravi never heard back.

Smith did get him a referral for a psychiatric nurse practitioner who could refill his meds; he first saw him one month into his move. Ravi hoped that the office might be able to refer him to a therapist, but none of the three providers it ultimately passed along took Ambetter. One of them had stopped taking insurance a decade ago; another had only ever seen patients willing to pay cash.

Without therapy, Ravi’s descent took on a momentum of its own.

One day, he drank himself to sleep and woke up with a pillow full of blood from his nose. On another, he white-knuckled a version of do-it-yourself detox that caused violent vomiting.

A close friend from high school, David Stanfield, was watching it all unfold. Ravi had always made David feel like they could pick up where they’d last left things. But this new withdrawn person, who would break into a sweat on a crisp night in the 60s, was a far cry from the guy he once knew.

Ravi was beginning to remind David of his brother-in-law, who had died of a drug overdose a few years earlier. So when Ravi sent a series of distressing texts, indicating that he had relapsed, David and another friend staged an intervention and took Ravi to the hospital.

But Ravi resisted rehab that didn’t come with therapy. He wondered what good another detox would do if it didn’t help him combat the root causes of his addiction. He was also worried that it would get in the way of his ability to work; Ravi was still booking some golf vacations through his business and figured he would have to surrender his phone during a rehab stay.

Instead, Ravi sated his withdrawals by feeding his body more alcohol, giving way to a March whirlwind of blackouts, massive hangovers and despondent texts to friends. When Ravi showed up to a baseball game looking pale and disheveled, a friend’s young son turned to his dad and asked: Is Ravi OK?

By early April, almost two months had passed since Barbara’s first call to Ambetter alerting them that Ravi was having trouble finding a therapist. Ambetter was obligated by state law to provide one outside of its network if Ravi couldn’t find one in a “timely manner” — which, in Arizona, meant within 60 days.

Within that span, its own records showed, he’d wound up in the emergency room seeking treatment for alcohol withdrawal and called a crisis line after he had thought about ending his life. Yet despite 21 calls with Ravi and Barbara, adding up to five hours and 14 minutes, the insurer’s staff had not lined up a single therapy appointment.

Ravi with his dog, Finn, in March 2023

Smith called Ravi four times over two weeks, right as his mental health crisis worsened. When he didn’t respond, she closed his case on April 7. Smith did not respond to multiple requests for comment or to questions about what information she tried to share with Ravi on these calls.

As Ravi’s attempts to find a therapist slowed down, his descent accelerated.

There was the episode at a Phoenix Suns game when paramedics had to treat him for severe dehydration after he downed a bottle of vodka.

There was the time he left the dog food container open and Finn got extremely sick from eating a week’s worth of food.

As Ravi crossed into his fourth month in Phoenix, he sat alone in his parked Kia Forte, surrounded by nothing but the lonely quiet, and screamed at the top of his lungs.

Barbara didn’t expect to spend Mother’s Day with Ravi. But after he told his uncle that he was having visions again of jumping in front of a speeding bus, she boarded a last-minute flight to Phoenix and settled into his couch where she could watch him as he slept.

On the morning of May 13, she was roused by his flailing limbs. He was having a seizure. Paramedics rushed Ravi to the hospital, the second time in the past month and fourth since the year began. Doctors gave him benzodiazepines, Valium and Librium, to treat the seizures and anxiety caused by his alcohol withdrawal. “Mom,” Ravi told Barbara, “I don’t want to die.”

One kind of treatment suggested by hospital staff, an intensive outpatient program, seemed the best fit. It would allow Ravi access to his phone for his business purposes. But neither Ravi nor Barbara could get a list of in-network programs from Ambetter, nor could they find them in the portal.

As Ravi called every program he could locate in metro Phoenix, and failed to find a single one that took his insurance, Barbara decided to pester her board member again. (The board member did not respond to multiple requests for comment.)

A few days later, someone with Centene provided the names of two in-network programs out of the dozens in Arizona. Only one offered the individual therapy Ravi was looking for.

That Friday, May 19, Barbara rode with Ravi to Scottsdale, where the intake staff at Pinnacle Peak Recovery drug-tested him. He tested positive for the benzodiazepines the hospital staff had administered following his seizure. Treatment programs sometimes restrict patients who test positive for those drugs because of the liability, experts told ProPublica. Pinnacle Peak Recovery’s staff urged Ravi to come back the following week. Barbara flew home, hopeful that Ravi would be admitted. (Pinnacle Peak Recovery did not respond to multiple requests for comment.)

On Monday morning, Ravi wrote the date, May 22, on a sheet of paper. He tore it out of a notebook, held it up to the side of his face and took a selfie with it. It was a way of marking time as well as a milestone: the first day of his newfound, hopefully permanent sobriety.

Ravi took a selfie on May 22, 2023, to mark the first day of his new sobriety. (Courtesy of Barbara Webber)

When he returned to Pinnacle Peak, however, he tested positive again. The second rejection hurt more than the first. Three days later, Ravi went back a third time; the drugs were still in his system. “I don’t know what else to do,” he told Barbara over the phone. “I am screwed.”

The answer of what else could be done was, unbeknownst to Ravi, buried in the fine print of his own insurance policy. Ambetter’s contract promised to find an out-of-network treatment program and make it available to Ravi, so long as Ambetter’s own employees decided that it was in his “best interest.”

Even though Barbara hadn’t read the fine print either, she had a sense that Ambetter could do more to help Ravi. So she pulled up the number of the last Centene employee she’d spoken with.

In a text message, Barbara expressed concern that the window to get Ravi help was closing. She was certain that, without more medical support ahead of admission to a treatment program, Ravi was bound to relapse. If that happened, Barbara pleaded, there was a good chance that he would have another seizure. She warned that he might even die.

Barbara awaited word on what to do next. She got no response.

The following morning, May 27, she drafted a message to Ravi. She described her visceral memory of his recent seizure — waking to the sound of his screams, pounding on his chest after his heartbeat briefly stopped, calling 911, uncertain if he would survive. “Those few minutes are seared into my soul and will go with me til the end of my days,” she wrote.

Barbara also wrote that she wanted nothing more than for Ravi to be around for the rest of her years. She promised to support him no matter what. If he kept going, he could find peace with Finn and find someone to love. But he had to keep going — not for her, not for Finn, not for his friends, not for anyone else. “I love you,” she wrote, “but you must love yourself.”

She hit send. Ravi didn’t reply right away, which was unusual.

An hour passed, then another. As the afternoon gave way to evening, Barbara called three times, unable to reach him. She tried to reach Phoenix’s 911 dispatch but couldn’t get through.

Not knowing what else to do, Barbara called David, whom Ravi had asked to be his local emergency contact.

David had grown deeply frustrated with Ravi for not getting the care he needed. And he was worried for his friend. He agreed to call 911.

A police dispatcher sent an officer to knock on Ravi’s door. The officer could hear Finn barking from the other side. When no one answered, the officer called David, letting him know that the police couldn’t enter the apartment without the building’s security guard, who wasn’t around right then.

Unsatisfied, David and his fiancée, Aly Knauer, drove over to Ravi’s. A security guard, who had just gotten back from his rounds, was reluctant to let them into the apartment at first. But after David and Aly explained the urgency, the guard relented. They headed up to the 12th floor and turned the corner toward Ravi’s apartment.

When the guard unlocked the door, Finn squeezed past and darted out. As Aly grabbed Finn, David peered inside, calling out his friend’s name. Four empty vodka bottles were strewn across the apartment. The Murphy bed was folded up against the wall. No one seemed to be there.

David glanced toward the window that frames the Phoenix skyline and felt a sense of relief. His friend might still be alive.

When he turned to leave, he looked again at the bed. He realized it was slightly ajar. As he leaned closer, to see why the bed hadn’t fully locked into place, David spotted something jutting out from the gap between the mattress and the wall: a lifeless foot.

About the Reporting

This story was pieced together from more than 1,000 pages of Ravi’s medical records and insurance files; audio recordings of Ambetter customer service calls; police reports and photos; court filings from three states; reports from insurance regulators; Ravi’s texts, phone logs, social media messages and emails; and more than 25 hours of interviews with people who knew Ravi best.

It was also guided by a lengthy chronology of key events that Barbara had compiled in the months after her son’s death. One thing she couldn’t bring herself to do: read the autopsy report. She asked her sister to summarize the findings, which ProPublica obtained and reviewed. Ravi’s death was ruled an accident, likely due to complications from excessive drinking.

ProPublica sent a detailed account of Ravi’s attempts to get help to 12 legal, insurance and mental health experts. They independently identified a variety of problems, including Ambetter’s provider directory inaccuracies, its network inadequacy and its customer service shortcomings.

We’re Investigating Mental Health Care Access. Share Your Insights.

by Max Blau, illustrations by Vanessa Saba, special to ProPublica

Struggling to Find an In-Network Mental Health Provider? Here’s What You Can Do.

1 year 2 months ago

ProPublica is a nonprofit newsroom that investigates abuses of power. Sign up to receive our biggest stories as soon as they’re published.

It’s hard to know if your health insurance plan is as good as advertised. You pay a monthly premium to access a network of health providers. But call the numbers in your provider directory, and you’re bound to find ones who can’t — or won’t — see you.

These errors are at the heart of a ghost network. Some providers have moved, retired or even died; others left insurance networks because of low pay and intense scrutiny. Even though these providers no longer accept your insurance, their names may remain in the directory. When that happens, policyholders are left to believe that the plan has more options than actually exist.

“Any inaccuracy constitutes a ghost network,” said Abigail Burman, a consumer protection attorney who studies provider directory errors. “This is basic information. It needs to be right.”

Insurers’ failures to correct these errors have led to dire consequences for people seeking mental health care, as demonstrated by a recent ProPublica investigation of one man’s months of struggle to access treatment. Because of the widespread nature of ghost networks, some policyholders are more likely to pay out-of-network costs and face a greater chance of treatment delays — if they get treatment at all.

ProPublica spoke with experts, clinicians and advocates to understand the challenges posed by provider directory errors. They all suggested specific ways for policyholders to navigate a ghost network.

How much do insurers know about the errors in their directories? And what are they required to do about it?

Insurers have acknowledged the problem and in some cases have vowed to address it. AHIP, a national association of health insurers, said in a 2023 statement to the U.S. Senate Committee on Finance that insurers update provider directories through “regular phone calls, emails, online reminders, and in-person visits.” However, AHIP wrote that insurers can’t always quickly fix errors because providers sometimes fail to keep their own professional information up to date. (AHIP declined ProPublica’s request for an interview.)

But Dr. Robert Trestman, a Virginia psychiatrist who testified about ghost networks to the same committee, told ProPublica that insurers are able to track “every detail of finance” around things such as billing and coding. Because of that, he said, insurers’ failures “to set up a system for keeping track of who is in network or not is on them.”

But insurers haven’t had to make it a priority. Simon Haeder, a Texas A&M University professor who studies ghost networks, said that insurers have “very little incentive” to closely monitor directories. Unless tougher regulations are passed, he said, policyholders will continue to struggle with directories full of “inconsistent, outdated or incomplete data.”

For years, it has fallen to academic researchers and secret shopper surveys to reveal the pervasiveness of these errors. Lawmakers have passed bills and called for further reforms. In spite of that, the errors still plague policyholders.

I’m shopping for a plan. How do I know if it is as good as advertised?

Do your homework. In the absence of the insurer making it a priority to update its directory, the task of checking its accuracy falls to you. You can head to the website of the insurer whose health plan you’re interested in buying. Find the provider portal. Since an insurer may offer different networks for each plan, experts suggest double-checking that you’re only searching for providers available in the network that you want.

If you already have a provider, type in their name to see if that person is listed in-network. If you don’t have one, find a provider that’s listed as being in network and taking new patients, and who seems to meet your needs. From there, experts encourage reaching out directly to the provider to verify that both of those things are true.

“Verify, verify, verify,” said Dr. Jane Zhu, an associate professor at Oregon Health & Science University’s medical school who studies ghost networks. “Accuracy in behavioral health provider directories is akin to a coin flip.”

I already have a health plan. What should I do?

Don’t worry if you’ve paid for a plan or have one through your employer. There are other ways to minimize the perils of provider directory errors.

But experts say that you’ll need to arm yourself with some facts.

Track down your “Evidence of Coverage.” The document, which is typically about 100 pages long, outlines what your insurer must do to fulfill its contractual obligations. For instance, if you can’t access an in-network mental health provider within a certain period of time, the insurer may be on the hook for tracking down an out-of-network provider.

From there, you can call the insurer to find out if it handles your mental health benefits or if it has outsourced management of them. If those benefits are “carved out” from your plan, you may have to seek answers about provider directory errors from that subcontractor. (Should you encounter any errors in your directory, this information could come in handy.)

Experts say that by getting these answers, you’ll be able to better fight for your rights.

What should I do if I encounter provider directory errors?

Health care experts warn that you’re likely to encounter errors in your provider directory. They advise not to become discouraged when you do.

David Lloyd, chief policy officer with the mental health advocacy group Inseparable, suggests taking notes of the calls to providers. Did they answer the phone? Did they say they accept your plan? Do they see new patients? You can write all your notes down in this handy worksheet created by Cover My Mental Health, an Illinois-based consumer advocacy group. Take photos of the directory errors, too.

How many calls should I be expected to make?

Some policyholders have called at least 50 supposedly in-network providers in pursuit of an appointment. But experts say you shouldn’t have to contact that many. Burman suggests making a “reasonable effort.” To her, that means making five to 10 calls to providers listed in-network.

She and others note that if you’re in distress because of your mental health, you don’t have to call on your own.

“Ask a friend or family member for assistance and to help advocate for you,” said Wendell Potter, a former Cigna vice president who is now a consumer advocate.

None of my calls secured an appointment. What should I do now?

If you’ve made that reasonable effort and haven’t managed to lock down a provider, experts recommend making another call to your insurer. Inform the customer service rep that you couldn’t make an appointment with a listed provider despite multiple attempts. Request that the rep schedule an appointment for you. Then ask for the rep’s email address and put the request in writing — and ask the rep to reply the same way.

Meiram Bendat, a lawyer and psychotherapist in California, suggests reminding insurers that they “must share in the responsibility of identifying timely and geographically accessible providers.” The exact regulations depend on where you live and the kind of plan you have, so some research may be required before the call. In some instances, you can ask for a care manager and the insurer will assign an employee who can help secure a mental health appointment.

“Set the expectation that the customer service rep needs to solve this problem,” said Joe Feldman, founder of Cover My Mental Health.

If the rep doesn’t connect you with a provider, health insurance experts recommend asking the rep to file an administrative grievance. Persistence is key, Burman said. Be assertive. Demand the grievance be addressed — or escalated to a manager who will resolve your concern.

“Don’t feel like you’re the problem,” Burman said. “They are the problem for engaging in deceptive practices.”

My ghost network grievance hasn’t been resolved. Now what?

While waiting for your insurer to act, health insurance experts also encourage reaching out to your insurance regulator.

Finding that regulator can be a tricky task given America’s complex patchwork of insurance regulations. You’ll need to determine which government agency oversees your insurer. While more research is required to see who will be able help, experts point to the following agencies as a starting point:

  1. If you purchased a plan from your state’s Health Insurance Marketplace, or have a fully insured plan through your private employer, you can get in touch with your state’s insurance department.
  2. If you have a Medicaid plan, you can contact your state’s Medicaid agency.
  3. If you are enrolled in Medicare, you can reach out to the Centers for Medicare & Medicaid Services.
  4. If you have a self-funded plan from your private employer or a health and welfare benefit plan from your union, you can try the U.S. Department of Labor’s Employee Benefits Security Administration.

Once you find the right agency, experts suggest that you prepare your complaint. You don’t have to write a new one from scratch. Gather information from your grievance, along with any other new developments, and submit that to the regulator.

Is there anything else I can do?

Yes, there are a few other ways. Whatever approach you take, Potter urges you to make noise, as if you are “a relentless squeaky wheel.”

If you are covered through an employer’s health plan, see if your human resources department can help talk to the insurer.

Or contact the constituency service offices of your federal and state elected lawmakers. They might be able to directly reach out, too.

Depending on where you live, there may even be legal services or consumer advocacy agencies that can help out as well.

“As a consumer, your superpower is not going away,” Burman said. “Your strongest weapon, in the face of a company that wants you to go away, is to not go away.”

We’re Investigating Mental Health Care Access. Share Your Insights.

by Max Blau